Mac's Adventures

Definition of complaining: to express dissatisfaction or annoyance about something I have learned to be aware of my thoughts and the words that come out of my mouth. During this time of social distancing and self-quarantine I have been made self aware. As many of you know most hospitals have cut off visitor options. The exception is for parents, and actually only 1 is allowed a day (currently hubby is riding the bench with pending covid testing); and those who may be end of life they may have one visitor (*that does not include infected patients of covid-19). I digress... After intrathecal today: I am not happy! So as I have been solo, with no options of trading off it’s just been me and my little Big Mac.  I have had a rough past 48 hours. Many of you know that Mac tested (-) for Covid-19, and I praise God for this. We are still not allowed into the hospital hallways, so my nurse has to warm my lunch and bring in items for Emerson. Everyone is required to wear mask,...

Amazing day for Mac in hospital *just a little 🤮  (may become a professional hospital photographer with thus light!) Praise: Emerson is doing well. His numbers to help protect his immune system is still not up, so he is susceptible to infection. Currently we are in hospital for the 3rd week, after Mac’s 3rd round of chemo. Now we are in the safest place, with this virus that has many countries on lock down and so many succumbing to it. We are still awaiting results for Elvin, who has quarantined himself in our master bedroom. He continues to have fevers, but is in good spirits. Just making sure his symptoms don’t get worse, and that my Mama Rosa (mil) and the kids are protected by God’s hands.  ==•==•== Now many of you all know my current situation I trained to become a doctor, got married, we have 3 beautiful children (1 in heaven...miscarriage before Mac), now just full time mom since Emerson’s AML diagnosis.  Before all this health crisis I was workin...

Definition according to Wikipedia: An emotion by perceived danger or threat, which causes physiological changes and ultimately behavioral changes, such as fleeing, hiding, or freezing from perceived traumatic events. That is the emotional state in which many of us are dealing with. Now I say this not to downplay the situation at hand with this spread of a virus that is increasing numbers of cases and of course deaths.  May I remind you however of the following *elderly unable to leave their homes      -lack of transportation     -financial status  -inability to stand in long lines (physical capability or concern they may fall ill) *many adults, who were hospitalized for other reasons (who have no option to have loved ones visit) *those who are ill, that unless I’m death bed, have no visitors Manny is enjoying books being read in Spanish (playing outside).  Mia is enjoying Being creative with arts/crafts (and being...

Good evening everyone.  First I would like to pray...often I do this at the end but I feel the need to with many people around the world dealing with this illness, Coronavirus ‘Covid-19’. Father God, I thank you for life. For the breath that was placed inside of me this day. But for many, today they would breath no more. Though this virus has taken so many lives at this time, there are so many other reasons death comes upon us. But, Lord, I do not desire to live in fear. For those of us who are living in fear, may your presence be known. May they realize that hope in you is far greater than hiding in the dark. Protect those, medical professionals and family members, who are tending to those who are sick.    Guard those who are at risk, elderly, children, those who may be immunocompromised. For those of us who may not be exhibiting symptoms, may we not assume that we cannot spread this illness. May we make wise choices when it comes to gathering or stepping outsid...

Good morning. So we are back! Following our post on Sunday, detailing our recent stay for Emerson’s 3rd round of chemo, he continued to have some vomiting episodes. Now I had prepared for this, and honestly if I had felt that Mac wasn’t feeling well enough to be discharge after his last dose of the round, I would have put my foot down, to make sure we stayed.  There is the thought of give the days of chemo that the patient needs and get them back home. This is all good in theory, although my thought is why not keep them for 24-48 hours, like an observation. By doing this you give a peace of mind for the parent/caregiver and allow for the patient if they become symptomatic they are in the right place. Now don’t get me wrong, it was nice to get home for a little while and be normal so to speak. Bathe my kids, comb my daughters hair, read books with my son, attempt to potty train Mia  🤨😒  (little girl is stubborn)! There has been at least some improvement in t...

Good evening everyone! So it’s been a while since my mom let me write to y’all (that’s how we say you all down here in LOUISIANA)! Well I just want to share some amazing news. So as many of you all know my last series of test in early February went well. I mean my scans were negative, no lesions in my brain. That yucky mass that was in my groin, vanished. I mean who would have thought? If you recall a special doctor who does radiation therapy had come to talk to my mom during our first stay. No need for that, praise God. Also my bone marrow has been  🥋👊🏽 cancers toosh with the help of the medicine and with God by my side! Well some of you may know that I was admitted this past Tuesday, right after my big sister Emelia’s birthday. Plan was for 5 days of chemotherapy. Only 2 medications this time (cytarabine: 2/day and etoposide: 1/day). I was a little worried that my body would be overwhelmed with all the medicine, and we would be here for a long time. Guess what...

Hello and good morning. Today’s post is a bit different from the rest. As of late I have become quite nostalgic wanting to hold on to as many memories as possible. Of course Emerson’s health most likely catapulted me into this, which is just fine by me.  So after my Emmanuel had his first birthday, his godfather Stephen Jr.    and his family made an album of    pictures from his birthday. I thought in that moment, what great memories this will be when Manny gets older. I told myself then, that for every birthday I would add pictures. I of course continued the tradition when I had my daughter Emelia. In honor of her 3rd birthday today I wanted to write her a note.  My dearest Mia,  Three years ago, after waiting an additional week of waiting for you to join us, I was given the greatest honor of becoming your mom. It seems like a blur, but I can recall every moment when you entered this world.  Since you have entered me and daddy...