Happy Birth day month!

Good morning. 

I want to only place thoughts in my head and my heart that are going to leave lasting memories. This is sometimes hard to do. I’ve realized this as I walk with Christ. Many assume that oh those Jesus loving folk got it all together, they just call on His name and blessings rain down. Well yeah that’s true...but even the most righteous have to go through trials and tribulations. I mean have you heard of Job, he got his world turned upside down.

Watch to find out about Job

So is everything Emerson going through fair? As his mother I would say absolutely not. Do I believe there is a greater purpose in all of Mac’s suffering and his road to recovery and being rid of this leukemia? YES! So despite my flesh wanting to yell from mountain top of how unfair this all is, my spirit desires that I continue to trust in Jesus and his plan for my son. Now that doesn’t mean I disregard treatment or forsake the wisdom and knowledge of the  medical staff. I know that God has allowed man to research and create things in medicine. 

Update points

✅ultrasound: no changed just sludge (read post from 12/5/19 for explanation of sludge)

✅liver # are still elevated

*many factors play a role in that: medicine (chemo), nutritional supplement he receives through his semi-permanent line, antibiotics, anti-fungal

So it is understandable the changes going on

✅feeding plan

So yesterday attempts to do feeds with my breastmilk through the g-tube, went well, but with all the excess phlegm he is producing it settles in his stomach and he becomes quite fussy. 

Today the nutritional feeds will be stopped and resumed at night only. We will work on giving him blouses of my breast milk (20cc/ml every two hours). That amount for the bolus may increase if he tolerates. This will be followed by a continues feed of 5cc/ml an hour over night. 

I’m praying by him getting something in his gut will help.

 *hence my desire to get some even better nutrients by going to a plant based diet

✅chemo in spine today

 😳

Leukemia lesions in the brain are difficult to get to, and be penetrated by chemo. You see after the first round of chemo we had not quite affected those lesions. Hence this round the combination was changed up a bit to include 3 medications 💉. So initially plan was twice a week until there were a total of three samples that were clear of cancer cells. He met that mark over a week ago, so currently it’s just once a week sampling and chemo infusions. 

Now I mentioned about treasured moments earlier. Do you know that today Emerson is 7months! 🧁🎉🧸🎈🎁

Happy birth day

I am just in awe in how God has been bringing Mac through each step of this journey. So I ask if you today to flood this particular post with well wishes and even prayers in thanksgiving as we celebrate this amazing little boy’s 7 month of life.

Thank you Father for choosing me to be Emerson’s mom. It has been such a honor these seven months to watch him grow. Despite this diagnosis of leukemia, you have allowed him to get over every hurdle. May you continue to bless his life and keep his health in the palm of your hands. Amen